Update on Brooklyn
After a little setback, Brooklyn finally got to go to Philly for her Car-T Cell experimental treatment. On October 29th, Brooklyn was declared “IN REMISSION!” she still has some treatments that she travels a couple of times a week to Cincinnati for, but for the main part she is home and doing well! Music to…
SOY and BOY!
These last couple of months have been crazy for all of us! Jack signed up to run a Student of the Year Campaign with the Leukemia Society and Joey was recruited for Boy of the Year, the male inspiration for the Man & Woman of the Year campaign with LLS. Jack learned so much…
Great Scans and Support for our heros!
Joey is the bomb-diggety!💣 He blasted those labs and x-rays with perfect scores! This was his 18-month post-treatment check-up. He has a CT at his 24-month then…only if needed! Pulmonary and Cardiovascular testing not again for 3 years! Oh goodness, this news is so good! But as a parent it feels so conflicting… the security…
Newly diagnosed or looking for facts?
Here are some links to get you started.
A Kid Again
A Kid Again is dedicated to providing hope, happiness and healing for families raising children who are living with a life-threatening illness through family "adventures and shared experiences".
The Leukemia & Lymphoma Society
If you or a loved one is battling a blood cancer or lymphoma, LLS is the place to go for information, help, and advocacy.
"Cancer is a heck of an opponent. It's a bully. But we aren't afraid of a fight. It's elusive. But our focus never fades. It's deadly. But we are known cancer killers. Since 1949, we've pioneered groundbreaking research that leads us to believe we will find the cures for cancer in our blood. Beating Cancer is in our blood." ~ LLS
Momcology® is a national community-based support organization, backed by a professional medical advisory board, directly serving caregivers of children with cancer through facilitated peer support programs, health awareness, information distribution, partnerships with pediatric cancer treatment centers, and engagement in research, projects and programs that address the ongoing needs of families affected by pediatric cancer from diagnosis, through treatment and into survivorship or bereavement care.
Coalition Against Childhood Cancer
Coalition Against Childhood Cancer (CAC2) is a collaborative network of nonprofits, corporations, and individuals from 36 states and five countries, supporting and serving the childhood cancer community. CAC2 members effectively advance a variety of childhood cancer causes by unifying their efforts.
Substance of Strength
For parents and caregivers. Everyone always says "Don't forget to take care of yourself".
Though it may feel as though a hole is being ripped into you, you are still whole. People need you. You are still the same person. But you have been refined by fire. You can either allow yourself to be consumed by that fire--burned to a crisp--or emerge a purer human being, ready to put what you've endured to use for others.
Have a Resource to Share?
We'd LOVE to hear about it!