Blogs
A Heartbreaking Loss and a Continued Mission
Ethan fought with every ounce of his being, but it is with a heavy heart that we share he has recently passed away from his illness. He is no longer in pain, but the void he leaves behind is immeasurable.
Throughout this entire agonizing journey, Ethan’s mom, Kamry, never left his side. As a single mom of four, Kamry managed her household while spending weeks in hospital rooms, often traveling hours away from home to ensure Ethan received his care.
While Ethan’s battle has ended, Kamry and his siblings are now facing an entirely new, overwhelming mountain: navigating the deep grief of losing a son and brother, while carrying the staggering financial aftermath of a year-long medical war.
Ethan may be gone, but his story is not over, and our promise to his family remains unbroken. Please see the Golf Outing tab for how you can help. We've assured Ethan's family that, even though he's gained his wings, they are still part of the village we have built here at the foundation.
SOY and BOY!
These last couple of months have been crazy for all of us! Jack signed up to run a Student of the Year Campaign with the Leukemia Society and Joey was recruited for Boy of the Year, the male inspiration for the Man & Woman of the Year campaign with LLS. Jack learned so much…
Great Scans and Support for our heros!
Joey is the bomb-diggety!💣 He blasted those labs and x-rays with perfect scores! This was his 18-month post-treatment check-up. He has a CT at his 24-month then…only if needed! Pulmonary and Cardiovascular testing not again for 3 years! Oh goodness, this news is so good! But as a parent it feels so conflicting… the security…
Resources
Newly diagnosed or looking for facts?
Here are some links to get you started.
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A Kid Again
A Kid Again is dedicated to providing hope, happiness and healing for families raising children who are living with a life-threatening illness through family "adventures and shared experiences".
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Blood Cancer United (formerly The Leukemia & Lymphoma Society)
If you or a loved one is battling a blood cancer or lymphoma, Blood Cancer United is the place to go for information, help, and advocacy.
"Cancer is a heck of an opponent. It's a bully. But we aren't afraid of a fight. It's elusive. But our focus never fades. It's deadly. But we are known cancer killers. Since 1949, we've pioneered groundbreaking research that leads us to believe we will find the cures for cancer in our blood. Beating Cancer is in our blood." ~ Blood Cancer United.
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Momcology
Momcology® is a national community-based support organization, backed by a professional medical advisory board, directly serving caregivers of children with cancer through facilitated peer support programs, health awareness, information distribution, partnerships with pediatric cancer treatment centers, and engagement in research, projects and programs that address the ongoing needs of families affected by pediatric cancer from diagnosis, through treatment and into survivorship or bereavement care.
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Coalition Against Childhood Cancer
Coalition Against Childhood Cancer (CAC2) is a collaborative network of nonprofits, corporations, and individuals from 36 states and five countries, supporting and serving the childhood cancer community. CAC2 members effectively advance a variety of childhood cancer causes by unifying their efforts.
Have a Resource to Share?
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