Blogs
2025 Outing Family- Meet the Shiverdeckers!
The Shiverdeckers were referred to us by a previous family and we couldn't be more blessed to have found them.
Here's a bit about Griffin, written by his mom, Anna...
Griffin Shiverdecker is the youngest son of Lee and Anna Shiverdecker. He has two older sisters, Millie (6) and Heidi (4), who absolutely adore him! In the fall of 2024, Griffin was constantly getting sick. Ear infections, severe colds, RSV, croup, flu, you name it! It would take him a really long time to get over one illness, just to then come down with the next thing. My mom gut kept telling me that something didn’t seem right, but the doctors just kept telling us it was viral and there wasn’t much they could do for him. In January 2025, Griffin got really sick and was spiking high fevers, stopped walking, and was extremely lethargic. We initially thought he had the flu, but finally after running some initial tests, our pediatrician recommended we go to the ER. His blood counts came back very low, and initially the doctors thought it was a cow’s milk allergy. We were admitted that night and Griffin received his first blood transfusion. The next day, we were sent downtown to Riley’s Children’s Hospital where further tests were conducted. On Sunday, January 26, 2025, Griffin was diagnosed with Acute Lyphomblastic Leukemia (ALL). He was 19 months old. In addition to the cancer, Griffin had a severe underlying infection that took weeks of testing, full body MRIs, and skin biopsies to determine ultimately was a staph infection that had caused nodules to develop on his body, where they also found pockets of cancer cells.
We spent 2 weeks in the hospital after his diagnosis, getting him set up for treatment, port placement and sorting out medications. We are blessed in the fact that Griffin’s specific cancer is very treatable and the survival rate is extremely high. While the treatment itself is a long process, we were grateful for a positive prognosis and hopeful for remission. Griffin will be completing a very rough phase of his treatment in early August and we are hoping he will be moving into mainentance by the end of the year, where appointments and chemo infusions will slow down greatly. (YAY!) Although he has not felt well over the last few weeks, the chemo is doing its job and his bone marrow seems to be slowly producing good blood cells back into his system. Griffin will complete treatment in April 2027 - right before his 4th birthday! We are so eager for him to ring the bell and move into remission. Until then, we appreciate all the prayers, check ins, and support from the most amazing family, friends and community.

Mighty Mason
an update on Mason… So, this whole golf outing came about when John took part in an outing last year that gave half of it’s proceeds to our nephew’s family (TeamIsenhour). It was a great outing with tons of people coming together to support great causes. Supporting a local family was icing on the cake.…

2020 Golf Outing Update
New/Updated information has been added to the Golf Outing! View the details here. I’d like to introduce all of you to Mason Garvey. Mason depicts everything Joey’s Journey Foundation was formed to support. JJF is donating half of the golf outing proceeds to Mason’s family. This is his story… The Garvey family of four was…
Resources
Newly diagnosed or looking for facts?
Here are some links to get you started.
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A Kid Again
A Kid Again is dedicated to providing hope, happiness and healing for families raising children who are living with a life-threatening illness through family "adventures and shared experiences".
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The Leukemia & Lymphoma Society
If you or a loved one is battling a blood cancer or lymphoma, LLS is the place to go for information, help, and advocacy.
"Cancer is a heck of an opponent. It's a bully. But we aren't afraid of a fight. It's elusive. But our focus never fades. It's deadly. But we are known cancer killers. Since 1949, we've pioneered groundbreaking research that leads us to believe we will find the cures for cancer in our blood. Beating Cancer is in our blood." ~ LLS
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Momcology
Momcology® is a national community-based support organization, backed by a professional medical advisory board, directly serving caregivers of children with cancer through facilitated peer support programs, health awareness, information distribution, partnerships with pediatric cancer treatment centers, and engagement in research, projects and programs that address the ongoing needs of families affected by pediatric cancer from diagnosis, through treatment and into survivorship or bereavement care.
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Coalition Against Childhood Cancer
Coalition Against Childhood Cancer (CAC2) is a collaborative network of nonprofits, corporations, and individuals from 36 states and five countries, supporting and serving the childhood cancer community. CAC2 members effectively advance a variety of childhood cancer causes by unifying their efforts.
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